Welcome To
MSA
Down Under
Help us Defeat MSA Now
Defeat MSA Down Under is a registered charity serving the needs of those affected by Multiple System Atrophy in Australia and New Zealand. It aspires to balance patient support, medical education, public awareness and promising research.
OUR LATEST PRODUCTS
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News From Social Media
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Congrats to MSA Related Researcher Prof Hardy on Knighthood Honor from Queen! https://www.uclh.nhs.uk/news/uclh-people-recognised-queens-new-year-honours-list
Just posted a photo https://www.instagram.com/p/CYI_4rTLT9F/?utm_medium=twitter
PODCASTS
“Long Live The Brains”
Hosts
Philip Tipton, MD (Mayo Clinic)
&
Kandice Jacobs Robinson, LFDE
Fighting to Defeat MSA: Part 1 of 2
Fighting to Defeat MSA: Part 2 of 2
“Safety Issues in Multiple System Atrophy”
MSA Research
Patient Programs
MSA Education
Public Awareness
Giving Programs
MSA Expert
Spotlight
Patrik Brundin, M.D., Ph.D.
Director, Center for Neurodegenerative Science, Van Andel Institute, Grand Rapids, Michigan
Dr. Patrik Brundin is one of the top cited researchers in the field of neuroscience with more than 350 publications on Parkinson’s and related diseases. He has 35 years of experience studying neurodegenerative diseases, disease pathogenesis and therapeutic neural transplantation into people. His current research focuses on pathogenic mechanisms of Parkinson’s as well as the development of new therapies that slow or stop disease progression or that repair damaged brain circuits. He was among the first to articulate the “prion-like” hypothesis, which describes how abnormal proteins related to the disease spread from cell to cell in the brain, causing the cellular damage that perpetuates Parkinson’s disease and related diseases such as Multiple System Atrophy.
List of Publications
Spotlight Links
- “Life on the river” – Reflection by Dr. Patrik Brundin in The Lanclet (neurology journal)
- The Patrik Brundin Lab (VAI)
about the
Defeat MSA Awareness Shoe – #KickMSA
The Defeat MSA Awareness Shoe ™ has traveled to dozens of countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!
To date, the Shoe has “Kicked MSA” in a dozen countries across the world.
As of 2020, our beloved Shoe is kicking MSA down under. If you are in Australia or New Zealand and you interested in having the Shoe stop by, send us an email: themsashoe@gmail.com
We will do our best to include in the schedule!
#DefeatMSA #KickMSA #DefeetMSA #MSAdownunder
about the
Defeat MSA Awareness Shoe – #KickMSA
The Defeat MSA Awareness Shoe ™ has traveled to dozens of countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!
To date, the Shoe has “Kicked MSA” in a dozen countries across the world. Learn more about the story and the globetrotting journey of the MSA Awareness Shoe. #DefeatMSA #KickMSA
Patients Need Our Help
Defeat MSA Down Under invites all our friends and allies, around the world, to join us in this noble fight, to speak for those who cannot, with one mind, one heart and one voice: to Defeat MSA forever!
Our Legacy Grants
Our Legacy Grants
The Defeat MSA Down Under special Individual Named Legacy Grants program enables donors to fund a scientific research, medical education, patient support or public awareness grant and name it in their own name, in tribute to someone or in memory of a loved one. The Legacy Grants program designates four levels of grants: $15,000 (Platinum), $10,000 (Gold), $5,000 (Silver) and $2,500 (Bronze). MSA research grants begin at the $10,000 level. Please email us: director@msadownunder.org.nz
MSA Blogs
Caregiver’s Blog
“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)
Caregiver Blog Post #2 The road to diagnosis... Are we there yet?...No Now?...No When are we going to get there? Said anyone who has taken a road trip. Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of "possible/probable MSA" and we were seeing...
“But I’d of had to miss the dance…” – Anne Kastelic (Caregiver, Cleveland, Ohio)
“But I’d of had to miss the dance…” – Anne Kastelic (Caregiver, Cleveland, Ohio) Today I opened Facebook to see a call for a caregiver writing opportunity for Defeat MSA’s “Caregiver’s Blog.” The idea is to share our story in an effort to help others on the MSA...
Researcher’s Blog
SEMINAR: “A-Syn Conformational Strains and Patient Perspective”
MSA Researcher Raphaella So, PhD candidate (Toronto), and Defeat MSA Patient Advocate Beverly K. Wilson offer some informed insights on Multiple System Atrophy in a recent talk sponsored by our friends at Cure Parkinson’s UK. Beverly’s presentation describes the...
“A Path Forward” – Dr. Amanda Woerman (Univ. of Massachusetts, Amherst)
Multiple system atrophy (MSA) is a progressive neurodegenerative disease that affects a key area of the brain responsible for regulating vital bodily functions. As a result, patients with MSA develop orthostatic hypotension (a drop in blood pressure when moving from...
Advocate’s Blog
BREAKING NEWS – GLOBAL VIRTUAL MSA CONFERENCE, SEPTEMBER 19, 2020 – FREE, INFORMATIVE & SAFE
Defeat MSA Down Under, Defeat MSA Alliance and MSA United International Consortium associated charities are excited to announce the world’s first MSA virtual conference! The Global MSA Virtual Support Symposium is FREE FOR ALL and will take place on Saturday, the 19th...
Is it All in the Head? – Diagnosis & Defeat MSA
“Defeat MSA Down Under Announces New Global Research Consortium”
FOR IMMEDIATE RELEASE, 7/16/20 “Defeat MSA Down Under Announces New Global Research Consortium” DETROIT, MI—Defeat MSA Australia and New Zealand announces the formation of a new global consortium of charities for people living with Multiple System Atrophy. The...
Patient’s Blog
“Finding Balance with MSA” – Joshua Calvert (Patient, Australia)
My name is Josh I am 46 years of age. My passions include surfing gardening, travelling, and cooking. I worked as registered nurse for 24 years both in Australia and the United Kingdom. I have been married for 20 years and have a 14-year-old son. I live in Illawarra...
“Defeat MSA allied charities were formed to give voice to those affected by this little known, devastating disease. Indescribable grief and suffering has been channeled into positive action to help fund crucial research and provide ongoing support for those dealing with MSA. Each one of the Defeat MSA charities are worthwhile organizations. I hope to see each of them continue to grow and reach more and more people in need.”
“All the charities associated with Defeat MSA are committed to the funding of clinical research, that kind which is most valuable to patients living with MSA today. Defeat MSA is also dedicated to supporting patients, educating medical professionals and raising public awareness. This disease does not have a marathon or a 5k run; instead they use an intriguing device: a traveling shoe in a symbolic marathon to spread awareness within the medical community and among the general public about this devastating disease.”
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