Caregivers Blog
“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)
Caregiver Blog Post #2 The road to diagnosis... Are we there yet?...No Now?...No When are we going to get there? Said anyone who has taken a road trip. Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of "possible/probable MSA" and we were seeing...
“But I’d of had to miss the dance…” – Anne Kastelic (Caregiver, Cleveland, Ohio)
“But I’d of had to miss the dance…” – Anne Kastelic (Caregiver, Cleveland, Ohio) Today I opened Facebook to see a call for a caregiver writing opportunity for Defeat MSA’s “Caregiver’s Blog.” The idea is to share our story in an effort to help others on the MSA...
MSA BLOGS
Advocate’s Blog
3rd ANNUAL VIRTUAL MSA CONFERENCE – SEPTEMBER & FREE
BREAKING NEWS – GLOBAL VIRTUAL MSA CONFERENCE, SEPTEMBER 19, 2020 – FREE, INFORMATIVE & SAFE
Defeat MSA Down Under, Defeat MSA Alliance and MSA United International Consortium associated charities are excited to announce the world’s first MSA virtual conference! The Global MSA Virtual Support Symposium is FREE FOR ALL and will take place on Saturday, the 19th...
Is it All in the Head? – Diagnosis & Defeat MSA
Researcher’s Blog
3rd ANNUAL VIRTUAL MSA CONFERENCE – SEPTEMBER & FREE
SEMINAR: “A-Syn Conformational Strains and Patient Perspective”
MSA Researcher Raphaella So, PhD candidate (Toronto), and Defeat MSA Patient Advocate Beverly K. Wilson offer some informed insights on Multiple System Atrophy in a recent talk sponsored by our friends at Cure Parkinson’s UK. Beverly’s presentation describes the...
“A Path Forward” – Dr. Amanda Woerman (Univ. of Massachusetts, Amherst)
Multiple system atrophy (MSA) is a progressive neurodegenerative disease that affects a key area of the brain responsible for regulating vital bodily functions. As a result, patients with MSA develop orthostatic hypotension (a drop in blood pressure when moving from...
Patient’s Blog
3rd ANNUAL VIRTUAL MSA CONFERENCE – SEPTEMBER & FREE
“Finding Balance with MSA” – Joshua Calvert (Patient, Australia)
My name is Josh I am 46 years of age. My passions include surfing gardening, travelling, and cooking. I worked as registered nurse for 24 years both in Australia and the United Kingdom. I have been married for 20 years and have a 14-year-old son. I live in Illawarra...
You May Also Like…
3rd ANNUAL VIRTUAL MSA CONFERENCE – SEPTEMBER & FREE
ONLINE GROUPS & VIDEO CHAT SUPPORT SESSIONS GUIDELINES
DEFEAT MSA UNITED FACEBOOK GROUPS & VIDEO CHAT SUPPORT MEETINGS GUIDELINES (These policies are subject to change...
“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)
Caregiver Blog Post #2 The road to diagnosis... Are we there yet?...No Now?...No When are we going to get there? Said...